She is a person for whom emotional relationships are more important than intellect and logic. It pains her that I kicked like a wild animal when I was a baby and that I had to use the squeeze machine to get the feeling of love and kindness. The irony is that if I had given up the machine, I would have been a cold, hard rock. Without the machine, I would have had no kind feelings toward her. I had to feel physical comfort in order to feel love. Unfortunately, it is difficult for my mother and other highly emotional people to understand that people with autism think differently. For her, it is like dealing with somebody from another planet. I relate better to scientists and engineers, who are less motivated by emotion.
At a conference a man with autism told me that he feels only three emotions, fear, sadness, and anger. He has no joy. He also has problems with the intensity of his emotions, which both fluctuate and get mixed up, similar to sensory jumbling. My emotions don "t get mixed up, but they are reduced and simplified in some areas. The emotional jumbling described by this man may be like the sudden emotional changes that normally occur in two-year-old children. They can be laughing one minute and having a tantrum the next. The tendency to shift emotional states rapidly often occurs in autistic children at a later age, whereas older autistic children may have the emotional patterns of a younger child.
During the last couple of years, I have become more aware of a kind of electricity that goes on between people which is much subtler than overt anger, happiness, or fear. I have observed that when several people are together and having a good time, their speech and laughter follow a rhythm. They will all laugh together and then talk quietly until the next laughing cycle. I have always had a hard time fitting in with this rhythm, and I usually interrupt conversations without realizing my mistake. The problem is that I can "t follow the rhythm. Twenty years ago, Dr. Condon, a Boston physician, observed that babies with autism and other developmental disorders failed to move in synchrony with adult speech. Normal infants will tune into adult speech and get in synch with it.
The work I do is emotionally difficult for many people, and I am often asked how I can care about animals and be involved in slaughtering them. Perhaps because I am less emotional than other people, it is easier for me to face the idea of death. I live each day as if I will die tomorrow. This motivates me to accomplish many worthwhile things, because I have learned not to fear death and have accepted my own mortality. This has enabled me to look at slaughtering objectively and perceive it the way the cattle do. However, I am not just an objective, unfeeling observer; I have a sensory empathy for the cattle. When they remain calm I feel calm, and when something goes wrong that causes pain, I also feel their pain. I tune in to what the actual sensations are like to the cattle rather than having the idea of death rile up my emotions. My goal is to reduce suffering and improve the way farm animals are treated.
People with autism are capable of forming very strong emotional bonds. Hans Asperger, the German doctor after whom the syndrome is named, states that the commonly held a.s.sumption of poverty of emotion in autism is inaccurate. However, my strong emotional bonds are tied up with places more than people. Sometimes I think my emotional life may appear more similar to those of animals than humans, because my feelings are simpler and more overt, and like cattle, I have emotional memories that are place-specific. For instance, I am not aware of a subconscious full of memories that are too painful to think about, and my emotional memory is very weak. It is highly doubtful that cattle become emotionally aroused when they think about a cowboy who whipped them, but they will have a measurable fear response, such as increased heart rate or stress hormone release, when they see that particular cowboy or return to the place where they were whipped. They often a.s.sociate danger with a specific place. People with autism also have place- or object-specific memories. Going back to the place where something good happened or looking at an object a.s.sociated with good feelings helps us reexperience the pleasure. Just thinking about it is not enough.
I have emotional reactions to places where I "ve stayed for a number of days or weeks while working on designing a livestock system. One of my clients told me that I fussed over a project for two weeks like a mother with a new baby. Places where I invest a lot of time become emotionally special. When I return to one of these spots, I am often overwhelmed with fear as I approach. I panic, thinking that I will be denied entry to my special place. Even though I know it "s irrational, I always survey each place I work in to make sure I can get back in. Large meat-packing plants have security guards, but in almost every plant I have figured out how to evade security, just in case it becomes one of my special places and I need to get back in. Driving by, I will see every hole in the fence and every unlocked gate and imprint them in my memory forever. My fear of blocked pa.s.sages feels very primal, as though I were an animal that has been trapped.
For me, finding these holes and gaps is similar to the way a wary animal surveys new territory to make sure it has safe escape routes and pa.s.sages, or crosses an open plain that may be full of predators. Will the people try to stop me? Some of the surveying is automatic and unconscious. I"ll find the unlocked gate even when I am not looking for it. I can "t help but see it. And when I spot an opening, I get a rush of happy excitement. Finding all the holes in the fence also reduces fear. I know I am emotionally safe if I can get through the fence. My fear of blocked pa.s.sages is one of the few emotions that is so great that it "s not fully suppressed by my antidepressant medication.
I had similar fearful reactions when I approached my symbolic doors. I was partly afraid that the door would be locked, like the blocked burrow of a tunneling animal. It was as if an antipredator system deep in my brain was activated. Basic instincts that we share with animals may be triggered by certain stimuli. This idea has been suggested by respected scientists such as Carl Sagan in his book The Dragons of Eden The Dragons of Eden and Melvin Konner in and Melvin Konner in The Tangled Wing The Tangled Wing. Judith Rapoport suggests in The Boy Who Couldn "t Stop Washing The Boy Who Couldn "t Stop Washing that obsessive-compulsive disorders, where people wash their hands for hours or repeatedly check whether the stove is off, may be the result of an activation of old animal instincts for safety and grooming. that obsessive-compulsive disorders, where people wash their hands for hours or repeatedly check whether the stove is off, may be the result of an activation of old animal instincts for safety and grooming.
The fear of blocked pa.s.sages persisted in both my visual symbolic world of doors and in the real world long after I stopped using door symbols. In my early days I would find the doors that opened up to the roofs of the highest buildings on the school campus. From a high vantage point I could survey the danger that lurked in the next stage of my life. Emotionally I was like an animal surveying the plains for lions, but symbolically the high place signified striving to find the meaning of life. My intellect was trying to make sense of the world, but it was being driven by an engine of animal fears.
Nearly thirty years ago, when I was navigating my visual symbolic world of doors, I recognized that fear was my great motivator. At that time I didn "t realize that other people experience other major emotions. Since fear was my major emotion, it spilled over into all events that had any emotional significance. The following diary entry shows very clearly how I attempted to deal with fear in my symbolic world.
October 4, 1968 I opened the little door and went through tonight. To lift up the door and see the wide expanse of the moonlight roof before me. I have put all my fears anxieties about other people on the door. Using the trap door is risky because if it were sealed shut I would have no emotional outlet. Intellectually the door is just a symbol but on the emotional level the physical act of opening the door brings on the fears. The act of going through is my overcoming my fears and anxiety towards other people.
The intellectual side of me always knew that making changes in my life would be a challenge, and I deliberately chose symbolic doors to help me get through after the first door almost magically appeared. Sometimes I had ma.s.sive activation of my sympathetic nervous system - the system that enables an animal or person to flee from danger - when I went through a door. It was like facing a lion. My heart would race and I would sweat profusely. These reactions are now controlled with antidepressant drugs. In conjunction with vast amounts of stored information in my memory, the drugs have enabled me to leave the visual symbolic world behind and venture out into the so-called real world.
Yet, it has only been during the last two or three years that I have discovered that I do not experience the full range of emotions. My first inkling that my emotions were different came in high school, when my roommate swooned over the science teacher. Whatever it was she was feeling, I knew I didn "t feel that way toward anyone. But it was years before I realized that other people are guided by their emotions during most social interactions. For me, the proper behavior during all social interactions had to be learned by intellect. I became more skilled at social interactions as I became more experienced. Throughout my life I have been helped by understanding teachers and mentors. People with autism desperately need guides to instruct and educate them so they will survive in the social jungle.
Update: Empathy and Emotions There are some situations where "normal " people have a horrific lack of empathy. Some of this lack of empathy is beyond my comprehension. Time after time I read in the paper about a company that is in financial trouble and they need to ask the workers to take a cut in pay. The workers agree to a pay cut, but the chairman of the board gives himself a bonus. This often makes the workers really angry. The workers would be more willing to undergo hardship if their leader had some hardship. This is a situation where ego and emotion blinds empathy. Why does this blindness occur? Power and ego circuits that I do not have cause this blindness. These managers seem to be incapable of learning from this same mistake made by other companies. Possibly these managers do not have empathy because they do not directly see how the workers react. In most cases, he or she does not face them. New research is revealing how empathy works. Brain circuits called mirror areas are activated when a person sees another person hurt. These circuits enable a person to experience the other person "s pain. Brain imaging studies by Finnish scientists have shown that the mirror circuits in people with Asperger "s syndrome have less activation compared to normal people.
People have empathy when they directly experience suffering. In my work with restaurant companies, I have taken many top executives on their first tours to farms and slaughter plants. Prior to the site visits, animal welfare was just an abstract thing. After they saw suffering firsthand, they made big changes and forced their suppliers to comply with animal welfare guidelines. Executives who had been apathetic jumped into action. One of them was totally disgusted after he saw a half-dead dairy cow going into their product. My job was to implement an auditing system for measuring animal welfare standards in slaughter plants. There was only one executive who reacted differently. On the flight home he clapped on a headset and told silly airline pilot jokes. He wanted to avoid discussing his visit to a slaughter plant because his reaction had conflicted with his beliefs. His company is one of the few companies that has failed to implement strong welfare guidelines.
This brings up another human emotion that I do not understand: denial. Some parents with children who are still not talking until age four cannot admit to themselves that something is wrong. I do not understand this kind of emotional lock on logic. Children with autism have to be taught what it is like to be in another person "s shoes in a very concrete way. When I threw dirt on another person, my mother explained that I should not throw dirt because I would not like it if they threw dirt on me.
I think there are different types of empathy For me to have empathy I have to visually put myself in the other person "s place. I can really emphasize with a laid-off worker because I can visualize his family sitting at the dining room table trying to figure out how the bills will get paid. If the worker fails to pay the mortgage he will lose his house. I really relate to physical hardship. I have observed that normal people have bad visual empathy. They are often not able to perceive how another person would see something. Many people leave out essential details when they give driving directions because they are not able to imagine what the other driver would be seeing. People have told me that they do not get lost with my directions. Normal people have emotional empathy but some of them lack empathy for sensory over sensitivity in autistic people. Some of the best therapists who work with individuals with sensory problems can empathize with these difficulties because they themselves have struggled with sound, touch, or visual oversensitivity The people who have the best sensory empathy have experienced the pain or total sense of chaos caused by faulty sensory processing.
Sometimes Consequences are Needed The subject of consequences is controversial. Some people think that nothing aversive should ever be done. I was always testing the limits. I knew that a tantrum in school had a penalty of no TV for one day. Discipline between home and school was consistent. Mother and the teachers were a team. I would have been out of control if there had been no consequences for bad behavior. Even though I was raised in a strict household, my abilities in art were always encouraged and never taken away as a punishment. I want to emphasize that I am totally against the use of aversives such as electric shocks. The repeated use of many aversives is wrong and abusive.
Positive methods should always be used for teaching and educating, but there are some situations where a single aversive event is needed to teach the child how another person feels. Three different teachers have told me that they had students who would constantly spit on them. They had tried all of the nonaversive methods such as ignoring it or explaining why they did not like it. Then one day after the teachers had been spat on one hundred times they got fed up and spat back. The child responded by saying, "Ick, I don "t like that. " The teacher said, "Now you know how I feel when you spit on me. " In all three cases, the spitting stopped. Now the child really understood how it felt to the other person when he spat.
Emotional Brain Versus Thinking Brain Type Simon Baron-Cohen of University of Cambridge in England introduced the idea of people as one of two emotional brain types. He states that people are either empathizers or systematizers. Empathizers are people who relate to other people through their emotions. Systematizers are people who are more interested in things than people. Normal people tend to be empathizers while people on the autism/Asperger "s spectrum tend to be systematizers. I scored high on Baron-Cohen "s test for being a systematizer. In the update of Chapter 1 I describe the three thinking types: visual, music and math, and verbal logic. Both emotional types of brain may have the different thinking types, but people in the autism/Asperger spectrum may have the most extreme variations of the thinking types. I hypothesize that some emotional circuits may fail to hook up and local networks in the "art " or "math " department may have extra connections. Brains will be highly variable depending on which "computer cables " get connected.
5.
The Ways of the World Developing Autistic Talent AT AGE two and a half I was enrolled in a nursery school for speech-handicapped children. It was staffed by an older, experienced speech therapist and another teacher. Each child received one-to-one work with the therapist while the teacher worked with the other five children. The teachers there knew how much to intrude gently into my world to snap me out of my daydreams and make me pay attention. Too much intrusion would cause tantrums, but without intervention there would be no progress. Autistic children will remain in their own little worlds if left to their own devices.
I would tune out, shut off my ears, and daydream. My daydreams were like Technicolor movies in my head. I would also become completely absorbed in spinning a penny or studying the wood-grain pattern on my desktop. During these times the rest of the world disappeared, but then my speech teacher would gently grab my chin to pull me back into the real world.
When I was three my mother hired a governess to take care of my younger sister and me. This woman kept us constantly occupied with games and outdoor activities and was an important part of my education and treatment. She actively partic.i.p.ated in everything we did to encourage me to stay connected. We would make snowmen, play ball, jump rope, and go skating and sledding. When I got a little older, she painted pictures with us, which helped develop my interest in art. It is important for an autistic child to have structured activities both at home and at school. Meals were always at the same time, and we were taught good table manners. Our governess taught me at an early age to be polite, and safety rules were drilled into my head. I was taught to look both ways before I crossed the street. All kids have to learn that the street is dangerous, but autistic children need to learn everything by rote. One or two warnings won "t do.
I was enrolled in a normal kindergarten at a small elementary school. Each cla.s.s had only twelve to fourteen pupils and an experienced teacher who knew how to put firm but fair limits on children to control behavior. The day before I entered kindergarten, Mother attended the cla.s.s and explained to the other children that they needed to help me. This prevented teasing and created a better learning environment. I am indebted to the good teachers at that school, who ran an old-fashioned, highly structured cla.s.sroom, with lots of opportunity for interesting hands-on activities.
I vividly remember learning about the solar system by drawing it on the bulletin board and taking field trips to the science museum. Going to the science museum and doing experiments in my third- and fourth-grade cla.s.srooms made science real to me. The concept of barometric pressure was easy to understand after we made barometers out of milk bottles, rubber sheeting, and drinking straws. We taped the straw onto the rubber sheeting, which covered the mouth of the milk bottle. Changes in the air pressure pushed the rubber membrane up and down and made the straw move.
My teachers also encouraged my creativity. When I was in the fifth grade I helped make many of the costumes for the school play. I was good at painting and art. Both at home and at school I was praised and encouraged to work on this.
When I started school, I was still diagnosed with brain damage. The teachers were aware of my diagnosis and were willing to work with me even though they had had no training in special education. Two years of intensive teaching prior to kindergarten had prepared me for a normal school. I was now fully verbal, and many of the more severe autistic symptoms had disappeared. When an educational program is successful the child will act less autistic. I now would play with other children and had better control of my tantrums. However, I still had problems with them, especially when I got tired or became frustrated when a teacher didn "t give me enough time to respond to a question. My mind processed information slowly, and answering a question quickly was difficult.
I was still a poor reader at age eight, when my mother tried a new approach. Every afternoon after school, I sat with her in the kitchen and she had me sound out the words in a book. After I learned the phonetic sounds and the rules, she read a paragraph out loud to me. Then I sounded out one or two words. Gradually she had me read longer and longer pa.s.sages. We read from a real book that was interesting instead of a little kid "s beginning book. I learned well with phonics, because I understood spoken language. It took me a long time to learn to read silently, though. Saying the words out loud helped me to keep the sequence organized. I also used to tell myself stories at night. Saying them out loud gave each story a sequence, which made them seem more real. Even in high school I would discuss philosophical concepts out loud with myself.
As I grew older, the people who were of the greatest a.s.sistance were always the more creative, unconventional types. Psychiatrists and psychologists were of little help. They were too busy trying to psychoa.n.a.lyze me and discover my deep dark psychological problems. One psychiatrist thought if he could find my "psychic injury, " I would be cured. The high school psychologist wanted to stamp out my fixations on things like doors instead of trying to understand them and use them to stimulate learning.
It was Mr. Carlock, one of my science teachers, who became my most important mentor in high school. After I was thrown out of regular high school, my parents enrolled me in a small boarding school for gifted students with emotional problems. Even though I had scored 137 on the Wechsler IQ test when I was twelve, I was totally bored with schoolwork, and I continued to get lousy grades. The other teachers and professionals at the school wanted to discourage my weird interests and make me more normal, but Mr. Carlock took my interests and used them as motivators for doing schoolwork. When I talked about visual symbols such as doors, he gave me philosophy books.
Likewise, the psychologist and psychiatrist wanted me to get rid of my squeeze machine, but Mr. Carlock defended it and went a step further toward helping me direct my interests and energies. He told me that if I wanted to find out why it relaxed me, I had to learn science. If I studied hard enough to get into college, I would be able to learn why pressure had a relaxing effect. Instead of taking my weird device away, he used it to motivate me to study, get good grades, and go to college.
Mr. Carlock then introduced me to the scientific indexes, such as the Psychological Abstracts Psychological Abstracts and the and the Index Medicus Index Medicus. Real scientists, I learned, do not use the World Book Encyclopedia World Book Encyclopedia. Through the indexes I could find the world "s scientific literature. In the mid-sixties there were no computerized scientific indexes. We didn "t even have photocopy machines in the public library. Each entry from an index had to be copied into a notebook by hand. Searching the scientific literature was real work in those days. Mr. Car-lock took me to the library and taught me how to do this and take the first step toward becoming a scientist. These were the books the real scientists used.
Mr. Carlock "s training served me well. Later in life, when anxiety attacks were tearing me apart, I was able to research what medication I needed in the library. Through the Index Medicus Index Medicus I found the answers. I found the answers.
Many children with autism become fixated on various subjects. Some teachers make the mistake of trying to stamp out the fixation. Instead, they should broaden it and channel it into constructive activities. For example, if a child becomes infatuated with boats, then use boats to motivate him to read and do math. Read books about boats and do arithmetic problems on calculating boat speed. Fixations provide great motivation. Leo Kanner stated that the path to success for some people with autism was to channel their fixation into a career. One of his most successful patients became a bank teller. He was raised by a farm family who found goals for his number fixation. To motivate him to work in the fields, they let him count the rows of corn while the corn was being harvested.
Dr. Kanner also noted that an autistic person "s fixations can be their way to achieve some social life and friends. Today, many people with autism become fascinated with computers and become very good at programming. An interest in computers can provide social contacts with other computer people. The Internet, the worldwide computer network, is wonderful for such people. Problems that autistic people have with eye contact and awkward gestures are not visible on the Internet, and typewritten messages avoid many of the social problems of face-to-face contact. The Internet may be the best thing yet for improving an autistic person "s social life. Tom McKean said when he was a college student that computers were a G.o.dsend because he could communicate with other people and not have to concentrate on trying to talk normally.
Teachers need to help autistic children develop their talents. I think there is too much emphasis on deficits and not enough emphasis on developing abilities. For example, ability in art often shows up at an early age. At meetings, parents, teachers, and people with autism have given me astonishing drawings by very young children. Autistic children as young as seven will sometimes draw in three-dimensional perspective. One time I visited a school where a twenty-year-old autistic man was drawing beautiful airport pictures on notebook paper. n.o.body was working with him to develop this talent. He should have been taking courses in drafting and computer drawing.
Tom McKean became frustrated during a college computer programming course because the professor flunked him for finding a better way to write a program. My guess is that the professor may have been offended by Tom "s direct manner, not understanding that being direct to the point of rudeness sometimes is a characteristic of autism. Tom would walk up to the blackboard and erase and correct his professor "s example. In his book Soon Will Come the Light Soon Will Come the Light, Tom wrote, "Look, if we did it this way instead, we could save four or five lines of code. If I was looking for a job as a programmer, I would not have been hired if I used the code he [the professor] insisted on. " Tom was frustrated and confused when he failed the course. A more creative professor would have challenged him with more interesting and difficult program writing.
Teenagers and adults with autism need to build on their strengths and use their interests. They should be encouraged to develop abilities in fields such as computer programming, engine repair, and graphic arts. (Computer programming is also an excellent field because social eccentricity is tolerated.) Autistics also need mentors to explain the ways of the world. I have helped many autistic adults by explaining to them that they think differently from other people. It makes it easier to figure out what and why things are going on when one learns that other people "s actual thinking processes are different. Video cameras and tape recorders can be very useful in teaching social interactions. When I look at videotapes of some of my old lectures, I can see the things I did wrong, such as using odd voice patterns. Teaching a person with autism the social graces is like coaching an actor for a play. Every step has to be planned. This is one reason that Mr.Carlock did more for me than teach me science. He spent hours giving me encouragement when I became dejected by all the teasing by cla.s.smates. Mr. Carlock "s science lab was a refuge from a world I did not understand.
When I became interested in something, I rode the subject to death. I would talk about the same thing over and over again. It was like playing a favorite song over and over on the stereo. Teenagers do this all the time, and n.o.body thinks that it is odd. But autism exaggerates normal behavior to a point that is beyond most people "s capacity for understanding. For example, many people thought the way I perseverated on my door symbols was weird and tried to get me to get rid of them. It took someone like Mr. Carlock to help me channel such fixations.
College and Graduate School Before I entered college, my mother informed the administration of my problems. The school was close to my old high school and I was still able to see Mr. Carlock on weekends. This was very important for my success. He provided needed support and encouragement while I adapted to life in college. I might not have been able to make it without him.
There were two kinds of college courses: easy ones, like biology, history, and English, and impossible ones, like math and French. Mr. Dion, the math teacher, spent hours with me after each cla.s.s. Almost every day I went to his office and reviewed the entire day "s lecture. I also had to spend hours with a tutor to get through French. For moral support there was Mrs. Eastbrook, the a.s.sistant dean "s wife. She was another one of the unconventional people who helped me. She had wild hair and wore long johns under her skirt. When I got lonely or down in the dumps, I went over to her house and she gave me much-needed encouragement.
College was a confusing place, and I strove to use visual a.n.a.logies to understand the rules of collegiate society. When I got into college, I made new a.n.a.logies to augment the simple ideas that I had come up with in boarding school to stay out of trouble. There I had quickly learned which rules I really had to follow and which rules I could bend through careful observation and logic. I developed a simple cla.s.sification system for rules, which I called "sins of the system. " A rule designated as a sin of the system was very important, and breaking it would result in severe loss of privileges or expulsion. Students got into serious trouble for smoking and having s.e.x. If a student could be totally trusted not to engage in these two activities, she could break some of the minor rules without any consequences. I designated smoking and s.e.x as sins of the system. Once the staff realized that I would not run off into the bushes and have s.e.x I was never punished for going out in the woods without a staff member. I was never given special permission to go hiking by myself, but on the other hand, I learned that the staff would make no attempt to stop me. I figured out that the teachers and houseparents were much more concerned about smoking and s.e.x, and I learned how to stay out of trouble.
For people with autism, rules are very important, because we concentrate intensely on how things are done. I always took the rules seriously and won the confidence of my teachers. People who trust me have always been a big help. But many people have difficulty deciphering how people with autism understand rules. Since I don "t have any social intuition, I rely on pure logic, like an expert computer program, to guide my behavior. I categorize rules according to their logical importance. It is a complex algorithmic decision-making tree. There is a process of using my intellect and logical decision-making for every social decision. Emotion does not guide my decision; it is pure computing.
Learning a complex decision-making process is difficult. I had a strict moral upbringing, and I learned as a child that stealing, lying, and hurting other people were wrong. As I grew older I observed that it was all right to break certain rules but not others. I constructed a decision-making program for whether rules could be broken by cla.s.sifying wrongdoing into three categories: "really bad, " "sins of the system, " and "illegal but not bad. " Rules cla.s.sified as really bad must never be broken. Stealing, destroying property, and injuring other people are in this category, and they were easy to understand. The "illegal but not bad " rules can often be broken with little consequence. Examples would be slight speeding on the freeway and illegal parking. The "sins of the system " category covers rules that have very stiff penalties for seemingly illogical reasons. Using my system has helped me negotiate every new situation I enter.
My Aunt Breechen was another important mentor. She was always very tolerant and encouraged me to work with cattle. I fell in love with Arizona while visiting her ranch. My infatuation with the cattle chutes there also provided the motivation that started my career, and I returned there to go to graduate school.
I wanted to do my master "s thesis in animal science on the behavior of cattle in feedlots in different types of cattle chutes, but my adviser at Arizona State University thought that cattle chutes were not an appropriate academic subject. Back in 1974, animal behavior research on farm livestock was a rarity. Once again, my fixation propelled me. I was going to do my survey of cattle behavior in cattle chutes even though the professor thought it was stupid. I then had to seek out a new adviser. Most of the professors in the Animal Science Department thought my ideas were crazy. Fortunately, I persevered and found two new professors, Dr. Foster Burton, chairman of the Construction Department, and Mike Nielson, from Industrial Design, who were interested. With them I figured out my survey methods. An idea that seemed crazy to conservative professors in animal science seemed perfectly reasonable to a construction man and a designer.
My master "s thesis brought together all of my ideas about and fixations on the way things work. I wanted to determine the effect of different squeeze chute designs on the behavior of the animals, the incidence of injury, and the chutes" efficiency The variables I looked at were the breed of the cattle, the design of the squeeze chute, and the size of the cattle. I measured how often the cattle balked and refused to enter the squeeze chute, speed of handling, and things that could injure the animals, such as falling on slippery surfaces and head stanchions that could choke them. To survey the cattle, I stood next to the chute with a data sheet and recorded the behavior of each animal while it was branded and vaccinated.
I then had to punch the data into IBM punch cards for a.n.a.lysis on the mainframe computer in the Engineering Department. When I was at Arizona State University, there were no nice little desktop computers. Keypunching five thousand IBM cards was mind-numbing work, because the data for each animal had to be punched onto an individual card. I would arrive at the keypunch lab before the engineers got there at 6:00 p.m. and punch cards until my bladder gave out. If I left to go to the bathroom, an engineering student would grab my keypunch machine. I became an expert on the keypunch and the card sorter. When the sorter jammed, the engineering students would stand by helplessly while I unjammed it. Often I fixed the machine for them so I could get their cards sorted so I could get back to running mine. I always referred to the decks of cards as my cattle. Visualizing each card as an actual animal made it easier to understand how to sort them into different groups for statistical a.n.a.lysis. For example, I could sort the cards into size categories to see if cattle size affected efficiency. I used to call running the card sorter "sorting cattle. "
The results of my survey indicated that the design of the equipment affected its operation. Some types of squeeze chutes were more likely than others to injure the steers, and some breeds of cattle were more accident-p.r.o.ne in them than others. I also did a time-motion study to determine the most efficient speed for handling the animals. If a crew tried to go too fast, animals were more likely to become injured and vaccinations were given improperly. Twenty years ago I determined how much time was required to perform vaccinations and other procedures on cattle. These figures are still good today. It is simply impossible to handle the animals faster and do a decent job.
In some ways, I credit my autism for enabling me to understand cattle. After all, if I hadn "t used the squeeze chute on myself, I might not have wondered how it affected cattle. I have been lucky, because my understanding of animals and visual thinking led me to a satisfying career in which my autistic traits don "t impede my progress. But at numerous meetings around the country I have talked to many adults with autism who have advanced university degrees but no jobs. They thrive in the structured world of school, but they are unable to find work. Problems often occur at the outset. Often during interviews, people are turned off by our direct manner, odd speech patterns, and funny mannerisms.
Twenty years ago I did not realize how weird I seemed. One of my good friends told me that I was always hunched over, I wrung my hands, and I had an excessively loud, unmodulated voice. I "ve had to get everywhere I "ve gotten through the back door. Fortunately, I had enough money to live on while I started very slowly pursuing my career on a freelance basis. Once, at an American Society for Agricultural Engineers meeting, I was able to tell that I made a poor impression on two engineers, because they ignored me and refused to discuss engineering with me. They thought I was strange until I yanked out the drawing I had done of the dip vat at John Wayne "s Red River feedlot. They said, "You drew that? "
People with autism can develop skills in fields that they can really excel in, such as computer programming, drafting, advertising art, cartooning, car mechanics, and small engine repair. Where they really need help is in selling themselves. In many cases, they have a better chance of getting hired if they are interviewed by other computer programmers or draftsmen instead of the personnel department. Likewise, showing a portfolio of work will help convince skeptical employers who are nervous about giving a job to an autistic person. I "ve known people who are engaged in satisfying jobs as varied as elevator repair, bike repair, computer programming, graphic arts, architectural drafting, and laboratory pathology. Most of these jobs use the visualization talents that many people with autism have. For instance, a good mechanic runs the engine in his mind to figure out what is wrong with it. People with autism who have savantlike memorization skills are good at cataloguing and reshelving books at the library. Piano tuning is another job they are good at, because many people with autism have perfect pitch.
I still remember taking that vital first step in establishing my credibility in the livestock industry. I knew if I could get an article published in the Arizona Farmer Ranchman Arizona Farmer Ranchman, I could go on from there. While I was attending a rodeo, I walked up to the publisher of the magazine and asked him if he would be interested in an article on the design of squeeze chutes. He said he would be, and the following week I sent in an article ent.i.tled "The Great Headgate Controversy. " It discussed the pros and cons of different types of chutes. Several weeks later I received a call from the magazine; they wanted to take my picture at the stockyards. I just could not believe it. It was plain old nerve that got me my first job. That was in 1972. From then on I wrote for the magazine regularly while I was working on my master "s degree.
Publishing articles led to a job of designing cattle chutes at Corral Industries, a large feedlot construction company. I was still living in my visual-symbol world, and I needed concrete representations of advancement in the cattle industry. I wore a green work uniform with cattle pins on the collar like a soldier "s rank insignia. I started out as a private, with bronze cattle pins, and as I became recognized in the industry I awarded myself high-ranking silver or gold cattle pins. I was totally oblivious to the fact that other people regarded my uniform as ridiculous.
Emil Winnisky, the construction manager at Corral Industries, recognized my talents, and he helped me to dress and act more appropriately. He had his secretaries take me shopping for nicer clothes and teach me better grooming. Now I wear a more appropriate western shirt, but I still award myself an advancement in cattle rank and put two silver cattle pins on my collar.
At the time, I resented Emil "s intrusion into my dress and grooming habits, but today I realize he did me a great favor. With much embarra.s.sment I remember the day that he plunked a jar of Arid deodorant on my desk and told me that my pits stank. People with autism need to be counseled on clothing and grooming. Tight or scratchy clothes make paying attention to work impossible, and many cosmetics cause allergic reactions, so each person needs to find stylish, comfortable clothes that do not irritate overly sensitive skin and deodorant and other cosmetics free from perfume (I have severe allergic reactions to perfumes). Shaving is a problem for some autistic men because of tactile oversensitivity, which makes a razor feel like a power sander. Electric razors are often easier to tolerate.
While I was working at Corral Industries I would visit the Swift meat-packing plant once a week. There I met Tom Rohrer, the manager, who was to become one of my most important mentors in the work world. The main thing Tom did for me at first was to tolerate my presence, plain and simple. I was still talking too much, but he put up with me because I figured out clever ways to solve problems, such as using plastic milk hoses to pad the edges of gates and prevent bruises. Gradually the superintendent, Norb Goscowitz, and the foremen took an interest in me. Several times Norb told me that he was advising me the same way he would advise his own daughter.
A year later, I sold Swift the contract to build a new cattle ramp for Corral Industries. During construction of this project, I learned that being technically right was not always socially right. I criticized some sloppy welding in a very tactless way, and the workers got angry. Harley Winkleman, the plant engineer, gave me some good advice. He told me, "You must apologize to the workers before a small problem turns into a big cancer. " He made me go to the cafeteria and apologize, and he helped me learn to criticize more tactfully.
A year later, I got into more social ha.s.sles at the plant, and Tom defended me after I annoyed the president of Swift. I naively believed that every employee who worked there would put loyalty to the company first. The president was embarra.s.sed when I wrote him a letter about mistakes on an equipment installation at another Swift plant. He did not appreciate my finding problems in his operation. From this I learned that loyalty to the best interests of the company was often not the primary motivator for another person "s actions. I will never forget that when the going got really rough, Norb told me, "No matter what, you must always persevere. "
I quit the job at Corral Industries and continued to write for the Arizona Farmer Ranchman Arizona Farmer Ranchman while I started my design business on a freelance basis. Freelancing enabled me to avoid many of the social problems that can occur at a regular job. It meant I could go in, design a project, and leave before I got into social difficulties. I still don "t easily recognize subtle social cues for trouble, though I can tell a mile away if an animal is in trouble. while I started my design business on a freelance basis. Freelancing enabled me to avoid many of the social problems that can occur at a regular job. It meant I could go in, design a project, and leave before I got into social difficulties. I still don "t easily recognize subtle social cues for trouble, though I can tell a mile away if an animal is in trouble.
When a new manager took over the Arizona Farmer Ranchman Arizona Farmer Ranchman, I did not realize that he thought I was weird and I was in danger of being fired. A fellow employee told me that he was turned off by me. My pal Susan saw the warning signs, and she helped me a.s.semble a portfolio of all my articles. After the manager saw how many good articles I had written, he gave me a raise. This experience taught me that to sell my services to clients, I always had to have a portfolio of drawings and photos of completed projects. I learned to avoid social problems by limiting my discussions with clients to technical subjects and avoiding gossip about the social life of the people I worked with.
Employers who hire people with autism must be aware of their limitations. Autistic workers can be very focused on their jobs, and an employer who creates the right environment will often get superior performance from them. But they must be protected from social situations they are unable to handle. An autistic man who had successfully worked at an architectural firm for many years was fired when he was promoted to a position that involved customer contact. Another man lost his job at a lab after he got drunk with other employees. Employers need to educate their employees about autism so that an autistic person is not placed in a social situation that he or she can "t handle.
But for every Mr. Carlock or Tom Rohrer, there will always be people who make life difficult. I remember the time when I drove into Scottsdale feed yard and walked up to the door that led into the cattle working area, and a man named Ron put his hand on the door and said that no girls were allowed. Back in the early seventies, no women worked in feedlots. Today many do, and many yards prefer women for handling and doctoring cattle, because they are gentler than men. But back then I didn "t know which was my greater handicap, being a woman or having autism.
Attempting to get into a man "s world was difficult enough. When I started designing facilities at meat plants, I had my car decorated with bull t.e.s.t.i.c.l.es and was constantly given "gross-out " tours. I had to get dressed in the men "s bathroom when I worked at the dairy at Arizona State University. At one plant I was shown the blood pit on three separate occasions. During the third walk through the blood, I stamped my feet and splattered it all over the plant manager. He respected me after he saw that I knew how to operate the equipment. What people call s.e.xual hara.s.sment today is nothing compared to what I went through.
Though he will never know it, when Ron blocked the door that led to the cattle working area, he instantly transformed a small, insignificant wood door in a fence into a special symbolic door in my pantheon of door symbols. Any event that actually involved a door being blocked seemed like part of a grand plan that G.o.d had in store for me. My visual-symbol world enabled me to keep on going. A blocked door had to be conquered. True to form, I was like a bull filled with pure determination. Nothing was going to stop me.
Update: Autism/Asperger "s and Careers I am very concerned about careers for people with high-functioning autism or Asperger "s syndrome. Since Thinking in Pictures Thinking in Pictures was written, more and more really gifted students are being labeled as having Asperger "s. I am worried that some of these students will have their careers hindered by the label. The students I am most concerned about are the very bright students who are not being challenged at school and who misbehave because they are bored. In some schools these students are kept out of gifted and talented cla.s.ses due to the Asperger "s label. was written, more and more really gifted students are being labeled as having Asperger "s. I am worried that some of these students will have their careers hindered by the label. The students I am most concerned about are the very bright students who are not being challenged at school and who misbehave because they are bored. In some schools these students are kept out of gifted and talented cla.s.ses due to the Asperger "s label.
I was a miserable, bored student and I did not study until I was mentored by Mr. Carlock, my high school science teacher. Over the years I have observed that the high-functioning autistic individuals who became successful have had two important factors in their lives: mentoring and the development of talents mentoring and the development of talents. The students who failed to have a good career often had no mentors and no development of their talents. I ended up in a career where I could use my visual skills to design cattle-handling facilities.
I have observed that there are many successful undiagnosed people with Asperger "s working in many jobs. One man is a plant engineer who keeps a gigantic multi-million-dollar meatpacking plant running. In another plant, I met a head maintenance man who was clearly an undiagnosed Asperger. The man who fixed my copier had Asperger traits. I have also been interviewed by several journalists who were on the spectrum. Some college professors are also Asperger. The computer industry is filled with Asperger people. These are the happy people on the spectrum. One Asperger computer programmer told me that he was happy because he was with his own people.
Many of these successful people are my generation now in their forties and fifties. How were these people able to get and keep their jobs? All of us were raised in the "50s and "60s where it was standard to teach all children social skills. When I was a child,I was expected to sit through formal Sunday dinners and behave. Most of the time I did. Rudeness was not tolerated and I was taught to say please please and and thank you thank you. Normal family activities provided structured opportunities to learn social skills. Sit-down meals and activities such as playing cards and board games like Chinese checkers taught turn-taking and patience.
Today many children lack this structure. Video games and time on the computer are spent solo. Many of my favorite childhood activities required required partic.i.p.ation with another child. I played with other children in board games, bike races, softball, and building tree houses. The other kids were fascinated with the kites and parachutes that I built. partic.i.p.ation with another child. I played with other children in board games, bike races, softball, and building tree houses. The other kids were fascinated with the kites and parachutes that I built.
Even the normal children today are growing up with more social problems. Later on they do not know how to behave at work. In the "90s, the Wall Street Journal Wall Street Journal started publishing more and more articles on how normal people should conduct themselves. The articles cover topics such as gossip, use of e-mail, and behavior at office parties. In the "70s and "80s these articles were rare, yet now there are one to three of them in most issues. In the "90s, MIT, the prestigious engineering school, started a course in social skills. Many engineering students have mild Asperger "s. Social skills training is extremely important for people on the spectrum. I am not suggesting turning "Aspies " into social beings. People with autism and Asperger "s are seldom interested in socializing for the sake of socializing. However, they need to have good manners and not be viewed as total slobs who wear the same dirty shirts for a week. started publishing more and more articles on how normal people should conduct themselves. The articles cover topics such as gossip, use of e-mail, and behavior at office parties. In the "70s and "80s these articles were rare, yet now there are one to three of them in most issues. In the "90s, MIT, the prestigious engineering school, started a course in social skills. Many engineering students have mild Asperger "s. Social skills training is extremely important for people on the spectrum. I am not suggesting turning "Aspies " into social beings. People with autism and Asperger "s are seldom interested in socializing for the sake of socializing. However, they need to have good manners and not be viewed as total slobs who wear the same dirty shirts for a week.
Mult.i.tasking Problems and Learning Driving Mult.i.tasking is still very difficult for me. I would have a horrible time working as a cashier in a busy restaurant where I would have to make change and talk to people at the same time. Often I am asked how I can drive if I cannot mult.i.task. I can drive because the operation of the car, steering and braking, has become a fully automatic skill. Research has shown that when a motor skill is first being learned, one has to consciously think about it. When the skill becomes fully learned, the frontal cortex is no longer activated and only the motor parts of the brain are turned on. I learned to drive on ranch roads in Arizona and I did not drive on the freeway or in heavy traffic for a full year. This avoided the mult.i.tasking issue because when I finally started driving in traffic, my frontal cortex was able to devote all its processor s.p.a.ce to watching traffic. I recommend that people on the spectrum who are learning to drive spend up to a year driving on easy roads until steering, braking, and other car operations can be done without conscious thought.
Portfolios to Show Your Work When I started freelance design work, people thought I was weird. I had to sell my work not my personality. People respected the accurate articles that I wrote for the Arizona Farmer Ranchman Arizona Farmer Ranchman and they were impressed with my drawings and photos of completed cattle-handling facilities. and they were impressed with my drawings and photos of completed cattle-handling facilities.
The successful people on the spectrum often get in the back door by showing a portfolio of their work to the right person. That often means avoiding the traditional front door with a job interview or the normal college admission process. One student circ.u.mvented the strict New York State testing requirements by sending a portfolio of her creative writing to an English professor. Her work was so good that he got her excused from the exams. I sold many jobs by sending portfolios of pictures and drawings to plant engineers. I contacted them after I read in a trade magazine that their plant was expanding.
Portfolios must be professionally and neatly presented. The person on the spectrum may need help choosing the best items to put in the portfolio. More information is in my careers book Developing Talents Developing Talents.
Update: Medication and Other Treatments The computer field is full of people with Asperger "s or Asperger "s traits. Many of these individuals followed their parents into the field. When they were eight, their parents taught them computer programming. In other cases, the person started at an entry-level job and then worked his/her way up. This is how many of the Asperger "s people who work in construction or in factories get good jobs. They start out as laborers and then they hang around the computers. The Wall Street Journal The Wall Street Journal has many articles about people who started highly specialized niche businesses. Parents and teachers need to think creatively to find mentors and jobs. A mentor might be a retired electronics specialist who lives next door. Mentors are attracted to talent. Talents should be developed into skills that can turn into careers. Individuals on the spectrum need to learn that high standards are required to be successful but having perfect work is impossible. I remember almost quitting livestock equipment design when one of my early customers was not completely satisfied. My friend, Jim Uhl, a building contractor, explained to me that satisfying everybody is not an attainable goal. Explain to the individual that getting 90 to 95 percent of the answers right on a test is excellent, A-grade level work. In a job your work has to be at the 90 to 95 percent level. The concept of a percentage may be easier to understand with a bar graph or pie chart. The individual needs to understand that in some jobs 90 to 95 percent is an acceptable standard but in jobs such as computer programming the error rate has to be lower. However, absolute perfection is like absolute zero in physics: it is impossible to attain. High school and college students must get work experience and learn basic skills like punctuality. They also must learn to do what the boss tells them and to be polite. Working for a seamstress helped teach me work skills when I was a teenager. When I was in college, I had summer volunteer jobs at a school for autistic children and at a research lab. The best work experiences use the individual "s talent. A volunteer job in a career related field may be better preparation for adult life than a paying job that is not career related. has many articles about people who started highly specialized niche businesses. Parents and teachers need to think creatively to find mentors and jobs. A mentor might be a retired electronics specialist who lives next door. Mentors are attracted to talent. Talents should be developed into skills that can turn into careers. Individuals on the spectrum need to learn that high standards are required to be successful but having perfect work is impossible. I remember almost quitting livestock equipment design when one of my early customers was not completely satisfied. My friend, Jim Uhl, a building contractor, explained to me that satisfying everybody is not an attainable goal. Explain to the individual that getting 90 to 95 percent of the answers right on a test is excellent, A-grade level work. In a job your work has to be at the 90 to 95 percent level. The concept of a percentage may be easier to understand with a bar graph or pie chart. The individual needs to understand that in some jobs 90 to 95 percent is an acceptable standard but in jobs such as computer programming the error rate has to be lower. However, absolute perfection is like absolute zero in physics: it is impossible to attain. High school and college students must get work experience and learn basic skills like punctuality. They also must learn to do what the boss tells them and to be polite. Working for a seamstress helped teach me work skills when I was a teenager. When I was in college, I had summer volunteer jobs at a school for autistic children and at a research lab. The best work experiences use the individual "s talent. A volunteer job in a career related field may be better preparation for adult life than a paying job that is not career related.
Other Sources of Learning High-functioning teenagers on the spectrum often get bullied in high school. I was kicked out of a large girls" high school after I threw a book at a girl who teased me. High school was the worst time in my life. Going away to a specialized boarding school where I could pursue interests such as horseback riding, roofing a barn, and electronics lab was the best thing that happened to me. It is a shame that some high schools no longer have cla.s.ses in art, auto mechanics, wood working, drafting, or welding. Some students need to be taken out of the social obstacle course of high school to attend a university, community college, or technical school. Online cla.s.ses are another option. There are now some special high school programs for Asperger "s that help develop strengths. Valerie Paradiz, a mother of a child with Asperger "s, started one of the first programs-the Aspie School in New York. I really like their slogan, "reengaging students in learning. " Their program emphasizes hands-on learning in areas such as movie making and graphic arts.
Exposing Children to Interesting Things Students need to be exposed to many different interesting things in science, industry, and other fields so they learn that there is more to life than video games. Talents can be developed and nurtured when children have different experiences where they can use their special skills. Scientists have fabulous programs for visualizing organic chemistry molecules. At MIT, John Belcher developed a computer program that turns mathematical equations into beautiful abstract designs. Getting a student hooked on this could motivate a career in chemistry and physics. Other fascinating areas are distributed computing projects, statistics programs, and computer graphics. The journal Science Science has a section called "Net Watch. " It provides descriptions and links to interesting science Web sites. Reviews of the best sites are in the magazine or on has a section called "Net Watch. " It provides descriptions and links to interesting science Web sites. Reviews of the best sites are in the magazine or on www.sciencemag.org/net.w.a.tch. Large bookstores have a full selection of computer programming books that can be used to educate and motivate students. Commercially available simulation software such as Sim City Sim City and and Spore can Spore can stimulate an interest in science, biology, or design. Children have to use their intellect to play these video games. Parents should bring trade journals and publications about their profession or business into the school library for students to read. Every industry from construction to banking has its own journal. stimulate an interest in science, biology, or design. Children have to use their intellect to play these video games. Parents should bring trade journals and publications about their profession or business into the school library for students to read. Every industry from construction to banking has its own journal. The Wall Street Journal The Wall Street Journal is another good resource. Old medical and scientific journals, computer industry magazines, and general interest publications such as is another good resource. Old medical and scientific journals, computer industry magazines, and general interest publications such as National Geographic National Geographic and and Smithsonian Smithsonian could also be given to the library. Parents could also direct teachers to the Web sites of their professional organizations and interesting sites related to their careers. Parents could show a PowerPoint presentation with lots of pictures of what they do at work to get students interested. Trips to fun places like construction sites, TV stations, control rooms, factories, zoos, farms, backstage at theaters, a graphic design studio, or architectural computer-aided drafting departments can help get students motivated. could also be given to the library. Parents could also direct teachers to the Web sites of their professional organizations and interesting sites related to their careers. Parents could show a PowerPoint presentation with lots of pictures of what they do at work to get students interested. Trips to fun places like construction sites, TV stations, control rooms, factories, zoos, farms, backstage at theaters, a graphic design studio, or architectural computer-aided drafting departments can help get students motivated.
When I was a child I spent lots of time outdoors watching ants and exploring the woods. Kids today miss out on these experiences. I loved collecting sh.e.l.ls on the beach and finding different weird rocks for my rock collection that lived on a shelf in our toolshed. Another fun activity I shared with other children was stick racing in the brook. We would drop sticks off the bridge into the brook and run to the other side to see which one came out first. Richard Louv "s book Last Child in the Woods Last Child in the Woods has many practical suggestions on how to get kids engaged with nature. A strip of woods or a vacant overgrown field can be used to get kids interested in biology, insects, conservation, ecology, and many other careers. There is a big world out there of interesting things and kids need to be exposed to them. has many practical suggestions on how to get kids engaged with nature. A strip of woods or a vacant overgrown field can be used to get kids interested in biology, insects, conservation, ecology, and many other careers. There is a big world out there of interesting things and kids need to be exposed to them.
Autism/Asperger Advocacy Many individuals with high-functioning autism or Asperger "s feel that autism is a normal part of human diversity. Roy, a hig